The "Awareness Campaign" Visualises Daily Challenges Faced by People
With Parkinson's as Revealed by New European Research
MADRID, August 25 /PRNewswire/ -- The European Parkinson's Disease Association (EPDA) today urged European decision makers and politicians to end inequalities in care and treatment access for people with Parkinson's disease.
The plea was made during the launch of EPDA's latest campaign, 'Parkinson's is visible, make it livable', intended to visualise the daily challenges faced by those with Parkinson's, increase people's knowledge and understanding of the disease and influence decision makers.
EPDA's campaign follows new research* highlighting the extent to which everyday activities are negatively impacted by Parkinson's. The research, Real Life, Real PD, conducted by EPDA among 3,000 people living with the disease, showed that eating, dressing, washing and speaking are some of the daily tasks significantly affected and that the majority of people do not feel in control of their symptoms. Almost half of all respondents described how their depression and mood swings placed an added strain on relationships with partners and families.
Speaking at the event, EPDA president Stephen Pickard commented, "Parkinson's is a costly disease and places a huge burden on carers and society as a whole. We need governments to realise that taking action to reduce this burden by ensuring people receive the best care and treatment available makes the most economic and social sense."
He continued, "There are nearly 1.2 million people living with Parkinson's in Europe, and with an ageing population this figure is set to rise. It's time to address inequalities in care and treatment of the disease and improve the lives of those affected by Parkinson's now and in the future."
The campaign was launched at the 12th Congress of the European Federation of Neurological Societies (EFNS) in Madrid where delegates heard from EPDA representatives and watched a series of emotive short films featuring people with Parkinson's battling with everyday tasks such as shopping and crossing the road.
The campaign, 'Parkinson's is visible, make it livable', is the first step towards eradicating inequalities in care and treatment access across Europe and a summit meeting is scheduled to take place in Brussels next year where MEPs will discuss the practical steps required to improve management of the disease.
Campaigner, Tom Isaacs (40), who has lived with Parkinson's disease for 12 years, commented at the event, "It always amazes me how Parkinson's is so visible socially and yet seemingly invisible to society. This is a ruthless condition and help is needed throughout Europe. This EPDA initiative is crucial. We need to increase understanding. We need to raise the profile. We need people not just to see, but to act."
To watch EPDA's short films and find out more about the campaign, please follow this link:
http://www.parkinsonsdecisionaid.eu.com/awarenessCampaign/2008/video.asp
*The full research report has been submitted for publication to the International Journal of Clinical Practice and is currently under review
1 comment:
I was diagnosed with Parkinson Disease for over 6 years which made me loose my job and my relationship with my Fiance after he discovered that i was having Parkinson, he departed from me, and i tried all my best to make him stays, but he neglected me until a friend of mine from UK told me Great healer, who will restore my life back with his powerful healing herbal medicine. then he sent me his email address and i quickly contacted him, and he said my condition can be solved, that he will treat the disease immediately only if i can accept trust on him and accept his terms and condition, i Agreed because i was so much in need of help by all means, so i did all he instructed me to do. And surprisingly after two weeks, He sent me a text, that i should hurry up to the hospital for a checkup, which i truly did, i confirm from my doctor that i am now ( PARKINSON NEGATIVE) my eyes filled with tears and joy, crying heavily because truly the disease deprived me of many things from my life, This is a Miracle, dr imoloa also uses his powerful herbal medicine to cure the following diseases: lupus disease, mouth ulcer, mouth cancer, body pain, fever, hepatitis A.B.C., syphilis, diarrhea, HIV/AIDS, Huntington's Disease, back acne, Chronic renal failure, addison disease, Chronic Pain, Crohn's Disease, Cystic Fibrosis, Fibromyalgia, Inflammatory Bowel Disease, fungal nail disease, Lyme Disease, Celia disease, Lymphoma, Major Depression, Malignant Melanoma, Mania, Melorheostosis, Meniere's Disease, Mucopolysaccharidosis , Multiple Sclerosis, Muscular Dystrophy, Rheumatoid Arthritis, Alzheimer's Disease, parkison disease, vaginal cancer, epilepsy, Anxiety Disorders, Autoimmune Disease, Back Pain, Back Sprain, Bipolar Disorder, Brain Tumour, Malignant, Bruxism, Bulimia, Cervical Disk Disease, cardiovascular disease, Neoplasms, chronic respiratory disease, mental and behavioural disorder, Cystic Fibrosis, Hypertension, Diabetes, asthma, Inflammatory autoimmune-mediated arthritis. chronic kidney disease, inflammatory joint disease, impotence, feta alcohol spectrum, Dysthymic Disorder, Eczema, tuberculosis, Chronic Fatigue Syndrome, constipation, inflammatory bowel disease, bone cancer, lung cancer. contact him on email- drimolaherbalmademedicine@gmail.com.
Post a Comment